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Nuvigil
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Posted 7/26/2012 12:37 PM
Group: Forum Members
Active: 10/9/2012
Posts: 3

Hello! I'm new to this...discussion forums and narcolepsy!  My son (17 years old) has just been diagnosed (2 days ago) with narcolepsy and is taking 150 mg Nuvigil/day.  So far it is not agreeing with him.  Should he hang in there and let his body get used to it? Should we ask for a different dosage? Should we ask for something else?  His side effects are dizziness, heavy feeling in his legs and just feels like sitting and staring at the wall - zoning out.  He has fallen asleep (nap) both days that he's been on it.  I guess my question is - how long does it take to get used to Nuvigil? Will he ever feel awake?

 

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Posted 10/6/2012 4:26 PM
Group: Forum Members
Active: 10/25/2012
Posts: 2

 

Hi Purdue,

I'm newly diagnosed with narcolepsy and this is my 2nd day of nuvigil and I feel like I've been kicked in the head by mule, ringing in my ears and a fever. I looked up nuvigil and found that you need to stop using if any of this occurs.

 

Get emergency medical help if you have any of these signs of an allergic reaction: hives; difficulty breathing; swelling of your face, lips, tongue, or throat.

Stop using armodafanil and call your doctor at once if you have any of these serious side effects:

  • fever, sore throat, headache, and vomiting with a severe blistering, peeling, and red skin rash;
  • bruising, severe tingling, numbness, pain, muscle weakness;
  • easy bruising or bleeding;
  • white patches or sores inside your mouth or on your...

Read All Potential Side Effects and See Pictures of Nuvigil »

 

Here is the link to the article:

http://www.rxlist.com/nuvigil-drug.htm

 

My head is killing me even as I write this, one thing for sure I am not going to wake myself up at 8:30 to take any more of this stuff.

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Posted 10/8/2012 7:54 AM
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Active: 10/9/2012
Posts: 3
My son has been switched to ritalin and seems to be doing ok with it.  You might ask for ritalin or adderall.
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Posted 10/8/2012 5:37 PM
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Active: 10/25/2012
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Quote: My son has been switched to ritalin and seems to be doing ok with it. You might ask for ritalin or adderall.

It looks like plan "B" for me is something called Xyrem. It is something the DR gave me litature and a dvd to watch when I got put on the Nuvigil script.

Heard anything about Xyrem?

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Posted 10/9/2012 7:06 AM
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Active: 10/9/2012
Posts: 3
Rip, I have not heard of Xyrem. Will research it as I'm sure my son will eventually become resistant to the Ritalin. Thank you for letting me know!
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Posted 5/5/2013 9:06 PM
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Active: 5/16/2013
Posts: 29
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